CompassionNet is a community-based pediatric and perinatal palliative care program sponsored by the Lifetime Healthcare Companies, including Excellus BlueCross BlueShield and Univera Healthcare. YourCare Health Plan is also a sponsor. We provide support to families caring for a child with a potentially life-threatening illness as well as families expecting the birth of a child with a serious medical condition. Starting at the time of diagnosis, our interdisciplinary team collaborates with other providers to address children and families’ physical, emotional, social, and spiritual needs and improve quality of life.
Our team includes case managers, nurse practitioners, child life specialists, social workers, physicians, nurses, a chaplain, and volunteers. Every CompassionNet family has a case manager who provides emotional and practical support and helps connect families with financial, therapeutic, and community resources. The CompassionNet medical team specializes in palliative care coordination and pain and symptom management. Child life specialists help the children on our program and their siblings understand and cope with their diagnosis, treatment, and emotions.
Some children are discharged from CompassionNet when their condition improves, while others remain on the program as they continue to receive treatment. If a child’s condition worsens, we provide compassionate end-of-life and bereavement care to the family. Throughout the ups and downs of a child’s illness, CompassionNet is there, celebrating with families when they receive good news and offering support and guidance when it is needed the most.
For more information, please call 1-800-308-3914.