What is CompassionNet? CompassionNet is a community-based pediatric and perinatal palliative care program that provides support to families caring for a child with a potentially life-threatening illness as well as families expecting the birth of a child with a serious medical condition.
What is pediatric palliative care? Pediatric palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness. The goal is to improve quality of life for both the child and the family. It is appropriate at any age and at any stage of an illness and can be provided along with treatment meant to cure.
What does perinatal mean? Perinatal refers to the time period surrounding a baby’s birth, and it generally stretches from the 20th week of a woman’s pregnancy until the child is 1 month old. CompassionNet’s perinatal program provides support to families that are expecting the birth of a child with a serious medical condition. Our team accompanies families through the remainder of their pregnancy and remains involved after the child is born.
What does community-based mean? CompassionNet meets families where they are, providing support both in the home and during hospital stays. We partner with the child’s pediatrician, specialists, and a variety of community resources in an effort to ensure continuity of care.
Who is on the CompassionNet interdisciplinary team? Our team includes social workers, nurse practitioners, child life specialists, physicians, nurses, a chaplain, and volunteers. When a need is identified, we also offer additional support through our collaborations with therapeutic providers in the community.
Who is eligible? CompassionNet is available to children under the age of 21 who have a qualifying medical condition and an Excellus, Univera, or Molina managed health insurance plan. We serve families who live throughout Upstate and Western New York.
How do I sign up? Children are referred to CompassionNet by their doctor. Please speak with your child’s pediatrician or specialist if you think that your child might benefit from the CompassionNet program. Click here to view the criteria that doctors should consider when referring a child to CompassionNet.
Who pays for CompassionNet? CompassionNet is sponsored by the Lifetime Healthcare Companies (Excellus BlueCross BlueShield and Univera Healthcare) outside of normal insurance benefits. Molina Healthcare is also a sponsor. There is no cost for families to participate in our program.
What if I have more questions? Please feel free to contact us using the information below. If you are already enrolled in CompassionNet, you can also contact your case manager.
330 Monroe Avenue
Rochester, NY 14607